By: Ayu Syahira Zaili, Jeredeana Fionna Lajanty, Muhammad Naim Muhamad Ali & Nur Farisa Nerina
![]() |
| Caring for Marisa is now on the shelves at major leading bookstores. Photo: Facebook Caring for Marisa |
| The author has written a letter for her late daughter the book. |
Learning that your child is terminally ill is one of the worst things for a present. It happened to Marhaini Mustaffa when she was told her daughter, Marisa, had an incurable brain tumour. At that time, Marisa was just for years old.
Exhausting all possible leads, Marhaini and her family made it her life's mission to help Marisa lead as normal a life as possible, even as Marisa's condition slowly worsened over the years. This story is now published in Caring for Marisa: A Memoir of Grief and Healing, written by Marhaini in remembrance of her spirited daughter.
![]() |
| Marhaini has written the trials and triumphs of her first born battling brain tumour. Photo: Facebook Caring for Marisa |
"I have known Marhaini for a long time, even before she was married," writes Dr Ali Azman Minhaj, from Subang Jaya Medical Centre, in the foreword. "And I have been Marisa's pediatrician since the day she was born. I remember her as a shy but always cheerful girl. And she stayed optimistic throughout her illness, which is very commendable and inspiring."
Remarkable, Marisa made it to her eighteenth birthday. She had lived much longer than anyone could have expected, getting into everything girls like her did as they grew up: social media, radio contests, Internet memes, American Idol and more. Despite her steadily deteriorating condition, she refused to be unhappy and stayed positive until the very end. Marisa had a life well lived, made possible by the unconditional love of a mother and her family.
"The beautiful thing is that Marhaini does not wallow in depression," Dr Ali notes. "Instead, she quickly took action to find ways to deal with the situation. Support from members of her family was there all the way. The manner by which the whole family handled Marisa's illness and how they cared for her until the very end is something which many of us can learn from."




